![]() Awareness of rare diseases has increased in the European Union since 2009 when the Council of the European Union asked the Member States to develop plans and strategies on this topic. In the European Union, a disease is considered rare when it affects fewer than one person in 2000 ( 1). | 13 Filière de Santé Maladies Rares TETECOU, Malformations Rares de la tête, du cou et des dents, Hôpital Necker, Paris, France.| 12 Centre de Reference, Maladies Orales et Dentaires Rares, Hôpital Rothschild, APHP, Paris, France.| 11 Université de Paris Laboratoire ECEVE INSERM, UMR1123, Hôpital Robert Debré, Paris, France.| 10 Université de Paris, URP2496, Paris, France.| 9 Université de Paris, Inserm U1163, Institute Imagine, Paris, France.| 8 Hôpital Bretonneau, Service de Médecine Bucco-Dentaire, GH Nord Université de Paris, Paris, France.| 7 APHP-Center for Rare Diseases of Calcium and Phosphate Metabolism, Paris, France.| 6 Filière OSCAR and Platform of Expertise for Rare Diseases Paris-Saclay, Bicêtre Paris-Saclay Hospital, INSERM-U1185, Le Kremlin Bicêtre, France. ![]() | 5 Reference Center for Rare Disorders of the Calcium and Phosphate Metabolism, Le Kremlin Bicêtre, France.| 4 Paris Saclay University, AP-HP, DMU SEA, Endocrinology and Diabetes for Children, Le Kremlin Bicêtre, France.| 3 Association of People with Vitamin-Resistant Hypophosphatemic Rickets, Suresnes, France.1 Université de Paris, FHU DDS-Net, Dental School, Paris, France.Authors: Caroline Nguyen 1, Elisabeth Celestin 2, Delphine Chambolle 3, Agnès Linglart 2, 4, 5, 6, Martin Biosse Duplan 1, 7, 8, 9, Catherine Chaussain 1, 7, 8, 10, and Lisa Friedlander 1, 11, 12, 13 View More View Less
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